On November 9, 2015 life as I knew it drastically changed. Our three month old second son was diagnosed with infantile spasms A "catastrophic" form of epilepsy. I'll never forget the doctor's words when I asked what his quality of life would be. "We can't answer that" she said. I Didn't understand. Our baby was healthy, he was born beautiful, perfect....he was born, healthy. Our world crumbled. In that little hospital room of 8 north in the children's tower, time stood still. It was the longest few hours of my life. Trying to wrap my head around the future when I was gasping for air in the present.
Obviously, Life did go on. The sun came up the next morning and little by little we've found our way. For the past year our family has hung to strength, hope and our faith to get us through the ups and downs this journey has taken us on. By the Grace of God we pulled through the darkest times of our lives.
How ironic.
November 9, 2016. Exactly one year later I was left speechless once again. Donald trump was elected to be our new president. Hillary was for families and children. Especially those children with special needs like my Anthony. What did trump do? He made fun of them. I can't support that. I was in disbelief. As I got over the utter shock and disappointment I began to piece together the irony of the day and what I have learned this past year.
Hope......,strength...... , and time.....
.....Maybe that is all we need.
